Greetings from Slovenia!
First I would like to say that this site is so positive and inspiring!
This is my baby boy, Ivan Oto Furlan whom we love more that anything.
Ivan is 5 months old and he had an open heart operation. He was in a hospital for 1 month (3 weeks in intensive care). Right after surgery he was under sleeping medications for a week, it was a really hard time for Ivan. His heart stopped beating twice and he was in critical condition for 3 days... and we couldn't do anything but wait (it’s hard to describe).
When you find out that your child has DS, the world seems to be falling apart, but it's so the opposite. It's like a great challenge and we want to do everything for Ivan so that he will enjoy his life and develop as much as possible.
I feel like DS made as all even better people, connecting all of us in a way I never imagined. Grandparents, brothers, sisters, aunts, friends even neighbors become truly compassionate...it's like being born again for all of us!
And now he is doing well...likes to smile a lot. We are waiting for a second heart operation when his weight will be around 6 kg (31lb- now he is 4100g or 9lb).
Ivan the day he was born (14.1.09 ) - we didn't know about the Down Syndrome yet.
Ivan taking his first bath at home
Ivan and Tine at rave party ;)
Ivan’s Daddy and I are looking forward to experiencing life with our Ivan so much!